International Workshop on Biobanking for Rare Diseases

This workshop will address effective sharing and reusability of unique samples, harmonized standard operational procedures (SOPs) and searchable sample catalogs of Rare Disease (RD) biobanking. The topics will include: principles of RD biobanking, how to establish a biobank for RDs, ethical concepts, quality management system, data and database management and security. Following the presentations by experts in the first day of workshop, a problem based tutorial section that will focused on the challenges in RD biobanking and a hands-on training will be provided to participants on the second day.

This workshop is co-funded by a European Commission H2020 project, ADOPT BBMRI-ERIC under grant nr 676550.

Please click here to register.